(573) 738-8648

PO BOX 14425, Kansas City, MO  64152

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Marlene's Kaleidoscope

Working Towards a Brighter Future

Empowering people by providing information about Lupus & offering support so that their voices can be heard in service of creating a better quality of life.

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Events
Second Annual POP - The Fountain Purple for Lupus
Fri, May 08
JC Nichols Memorial Fountain
May 08, 5:30 PM – 7:00 PM
JC Nichols Memorial Fountain, 50 W 47th St, Kansas City, MO 64112, USA
At Marlene’s Kaleidoscope, we want to honor Lupus Awareness by turning the J.C. Nichols Memorial Fountain Purple.
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Walk to End Lupus Now™ 2020
Sat, Jun 06
Shawnee Mission Park - Theatre
Jun 06, 9:00 AM
Shawnee Mission Park - Theatre , 7710 Renner Rd, Shawnee, KS 66217, USA
Come walk with Marlene's Kaleidoscope. Walk to End Lupus Now events are conducted nationwide by the Lupus Foundation of America and its national network to raise money for lupus research, increase awareness of lupus, and rally public support for those who suffer from its brutal impact.
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2020 Summer Jam Youth Retreat
Fri, Jun 12
YMCA Trout Lodge
Jun 12, 3:30 PM – Jun 14, 11:30 AM
YMCA Trout Lodge, 13528 State Hwy AA, Potosi, MO 63664, USA
Get out of your bubble! Register today and join me for a fun weekend with other girls ages 12-19 living with lupus!
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Third Annual Lupus Fundraiser - A Night Of A Thousand Faces
Thu, Aug 13
Grand Street Event Space
Aug 13, 5:00 PM – 10:00 PM
Grand Street Event Space, 4740 Grand Ave Suite 100, Kansas City, MO 64112, USA
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Enjoy the Moment

Who We Are

Our Roots

Marlene’s Kaleidoscope is dedicated to improving the lives of people affected by all forms of Lupus. We strive to empower people by providing information about Lupus and offering support, so that their voices can be heard in service of creating a better quality of life through research, public awareness, advocacy and education.

 

About Lupus

Lupus is a chronic autoimmune and inflammatory disease. In a patient with Lupus, the immune system that was originally designed to protect the body turns against itself. This in turn leads to inflammation, and chronic inflammation over time damages the body’s organs and tissues.

Although Lupus can affect almost any part of the body, the organs mostly affected are the kidneys, heart, lungs, and brain. Lupus can also affect the joints, blood vessels and skin.

Of those diagnosed, 80% will be between the ages of 15 and 45 years old. Lupus is a complicated disease to understand. When a patient is diagnosed with Lupus or is being tested for it, a number of questions can pop into their minds including:

“Where does it come from?”
“How long will I have it for?”
“Is Lupus contagious?”
“What are the different types of Lupus?”

To begin, the cause of Lupus is not yet known. It is believed that different pieces such as genetics, the patient’s environmental factors and/or triggers, and hormones might fit together to make up the mysterious puzzle that is known as Lupus. It is important to note that Lupus is not contagious.

Studies are being conducted to determine whether genes, medications, stress or certain viruses bring about the disease. Although there is no cure for Lupus at the moment, most cases can be effectively controlled with medication. Research is continuously being done on Lupus and new medications are being created.

Most Lupus patients lead active or semi-active lives. Lupus patients can have periods where their disease is not active, otherwise known as a remission period, and they can have periods where it is active, also known as a “flare up.”

Each Lupus patient is different and it is often said in the Lupus community that no two patients are alike. Over time, you will learn more about your body and how Lupus affects you.